Life Without Limits: how a research-based treatment cured Leon of sickle cell disease

Leon and his twin sister, Leigh-Marie, were born in the summer of 2021. When the babies were only about a week old, their parents, Stacy and Leon Sr., received an alarming call from UPMC Children’s Hospital of Pittsburgh. The standard newborn screening test administered to all babies after birth revealed that Leon had sickle cell […]

Liam’s Super Heart: Care from Birth at the Heart Institute

a boy dressed as a superhero pretending to fly while his father holds him up

Baby Liam wasn’t breathing when he was born. He spent the first five nights of his life in the NICU at his local birth hospital, struggling to survive. He was diagnosed with a genetic illness called hypertrophic cardiomyopathy, a condition in which the heart muscle becomes thickened and stiff, making it harder for the heart […]

The Best Thing for Him: Miller’s Treatment for HLHS

Before he was even born, Miller was diagnosed with hypoplastic left heart syndrome (HLHS). A rare congenital heart defect in which the left side of the heart is extremely underdeveloped, HLHS prevents normal blood flow through the heart.

Home Away from Home: How Zoey’s Medical Team Kept Her Comfortable

Zoey’s journey at UPMC Children’s began with a few minor but unsettling symptoms. The four-year–old began experiencing random fevers and soon stopped eating altogether. Her concerned mother, Asterria, sought answers from their local hospital. The diagnosis was strep throat—an explanation that didn’t quite fit the severity of Zoey’s condition. Determined to find an answer, Asterria […]

Moving Mountains: Kenny’s Remarkable Recovery

On March 4, 2024, Emily experienced what can only be described as every parent’s worst nightmare. She was holding her 2-year-old, Kenny, in her lap, attempting to rock the toddler to sleep. Suddenly, Kenny grabbed her chest, vomited, and went limp in her mother’s arms. Panic-stricken, Emily immediately called 911. Kenny was rushed to the […]