Samantha’s Survivorship Story

When Samantha was only 2, her parents discovered a lump on her arm. After the family’s local hospital in Erie failed to uncover a diagnosis, Samantha’s parents brought her to UPMC Children’s Hospital of Pittsburgh for treatment. At UPMC Children’s, 2-year-old Samantha was diagnosed with cancer. She had a complex combination of rhabdomyosarcoma and Ewing […]

Sawyer’s Race for Research

Sawyer, patient with FAOD, and his family

A Family’s Fight for A Cure Sawyer, a 9-year-old from Bowling Green, Kentucky, is a joyful, silly, extroverted kid who enjoys meeting new friends. “Sawyer loves his people, and he loves them fiercely,” his mom, Katie shares. “I’m constantly in awe of his strength.” A Life-altering Diagnosis When he was still a toddler, Sawyer began […]

River’s Road to Recovery

River, a patient diagnosed with factor VII deficiency and Glanzmann thrombasthenia, smiles in his hospital room.

The World’s Only Known Case, But Still Thriving River was born at a nearby hospital in January 2019. Shortly after his birth, his parents, Lauren and Rick, noticed some unusual bruising on his back. Doctors couldn’t immediately identify the cause. At his first pediatrician visit the morning after he was discharged, the physician agreed something […]

Celebrating 10 Years of Nora’s Warriors

A girl on her dad's shoulders facing away from the camera. Their shirts say "Nora's Warriors"

Nora’s Warriors is a Walk for Children’s team that has been walking together since our first Walk for Children’s back in 2016 in honor of their warrior, Nora. Below, Nora’s mom, Andi, tells the story of how Nora’s Warriors came to be. Register for Walk for Children’s today! Our family was introduced to UPMC Children’s […]

Life Without Limits: how a research-based treatment cured Leon of sickle cell disease

Leon and his twin sister, Leigh-Marie, were born in the summer of 2021. When the babies were only about a week old, their parents, Stacy and Leon Sr., received an alarming call from UPMC Children’s Hospital of Pittsburgh. The standard newborn screening test administered to all babies after birth revealed that Leon had sickle cell […]

Liam’s Super Heart: Care from Birth at the Heart Institute

a boy dressed as a superhero pretending to fly while his father holds him up

Baby Liam wasn’t breathing when he was born. He spent the first five nights of his life in the NICU at his local birth hospital, struggling to survive. He was diagnosed with a genetic illness called hypertrophic cardiomyopathy, a condition in which the heart muscle becomes thickened and stiff, making it harder for the heart […]